We are finally Home! Sadie hasn't had any seizures since Sunday! However she is on A LOT of medication. She sleeps often and when she is awake she is definitely unstable. We are in the process of weaning her off of one of the medications and if all goes well with the decrease of that one, then we may possibly wean another one. Then that will only leave two meds. She is still on the ketogenic diet and will remain on it as long as her seizures are controlled. Right now its sort of a mystery as to why her seizures have decreased. the doctors say it could be the meds, it could be the diet, or it could be a combination of the two. We won't know until we start peeling away some of these "layers" of meds and that has to be a slow process. If you take seizure meds away too quickly it could cause more seizures. Of course we still don't know what's causing her seizures. But we do know that after the PET scan she is showing seizure activity on both sides of the brain, so for right now surgery is out. However, we do have a consultation appointment in December to discuss having the VNS (vegas nerve stimulator) inserted in Sadie. For now, we are just so happy to be home and to be back to a somewhat normal life again. God is in control and so we have all of our faith in Him and His plan for Sadie. Again, thank you for the prayers and thank you for all of the support. We are truly blessed to have so many people in our lives that care and love us.
We are finally Home! Sadie hasn't had any seizures since Sunday! However she is on A LOT of medication. She sleeps often and when she is awake she is definitely unstable. We are in the process of weaning her off of one of the medications and if all goes well with the decrease of that one, then we may possibly wean another one. Then that will only leave two meds. She is still on the ketogenic diet and will remain on it as long as her seizures are controlled. Right now its sort of a mystery as to why her seizures have decreased. the doctors say it could be the meds, it could be the diet, or it could be a combination of the two. We won't know until we start peeling away some of these "layers" of meds and that has to be a slow process. If you take seizure meds away too quickly it could cause more seizures. Of course we still don't know what's causing her seizures. But we do know that after the PET scan she is showing seizure activity on both sides of the brain, so for right now surgery is out. However, we do have a consultation appointment in December to discuss having the VNS (vegas nerve stimulator) inserted in Sadie. For now, we are just so happy to be home and to be back to a somewhat normal life again. God is in control and so we have all of our faith in Him and His plan for Sadie. Again, thank you for the prayers and thank you for all of the support. We are truly blessed to have so many people in our lives that care and love us. 
