Well, we finally heard back from Dr. Puri's office concerning Sadie's 4 hour EEG from last week. We have some good news and some concerning news. The good news is that they are seeing NO seizure activity. YEAH! God knows what HE is doing. The concerning news is that they are seeing some "mild slowing" in her brain. Of course our immediate question was "What does that mean?" Their response was very vague. They have no way of knowing for sure what that could mean for Sadie. However, they did say that when an EEG shows "slowing" that is a sign of learning delay. Now, to what extent she will be delayed, they can't answer at this time. Only time will tell. The good thing is that her "slowing" is only "mild" and not "severe" or signifigant". So, right now with us having Sadie in First Steps Therapy that is the best thing we can do for her. At home, we are already seeing improvements just in the past month. She is more stable and pulling up more. She is standing better. She is chewing better. She seems more focused. We have weaned her off of one medicine entirely and we have lowered the dosage on another. She is no longer on the ketogenic diet, and at this time we are not anticipating VNS surgery. It has been 44 days since her last seizure! God knows what HE is doing!
Tuesday, December 18, 2007
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6 comments:
she looks great! i am so thrilled to hear about the lack of seizure activity! we continue to think of you 4 daily and keep you in our prayers always! much love is sent your way!
YEAH!!! I'm so happy for you guys! It's your Xmas miracle! I hope that Sadie continues to get better and that normalcy can return to your lives.
great! i am so happy for you guys! we pray for you daily and will continue to do so! we can't wait for you to come back to school!!!
I am so happy to hear the good news. Sadie looks great & Scooter is too cute. (CoCo does the same thing, riding around the island in the kitchen on her Pooh bike.) Hold on to your faith & HE will see you through. You continue to be in our prayers. Have a Wonderful, Merry, Merry Christmas. We love you all!
We have so much to be thankful for this Christmas! The Powers family continues to pray for Sadie daily!
I'm very happy to hear Sadie is doing better. She looks like she is such a happy little girl. I miss you guys and we'll have to make it a point to see each other sometime soon. I'll continue to pray for you guys. Have a Merry Christmas and a Happy New Year!
I'll leave you with one of my favorite quotes. "We'll see things today we shouldn't have to see, but listen up, we'll do it together. We'll be together, and we'll all come back together."
---anonymous fire lieutenant
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