Christmas Recovery...the day after. Still excited about the new toys..............

Christmas at Mamaw and Papaws. Never a dull moment with four under three.

Christmas Morning!!!!

Hey Santa, you look a little like my Da-da...hey wait...that is my Da-da. I want to wear it, I want to wear it, my turn!

Scooter and Sadie "hiding" inside the entertainment center.

Who got the most presents at Mo-mo and Po-po's house? We all made out pretty well. Scooter and Emma took turns being our "entertainment" for the evening.
At Papaw Dan's and Kate's Sadie was tired but she put enough energy into opening some presents.

Well, we finally heard back from Dr. Puri's office concerning Sadie's 4 hour EEG from last week. We have some good news and some concerning news. The good news is that they are seeing NO seizure activity. YEAH! God knows what HE is doing. The concerning news is that they are seeing some "mild slowing" in her brain. Of course our immediate question was "What does that mean?" Their response was very vague. They have no way of knowing for sure what that could mean for Sadie. However, they did say that when an EEG shows "slowing" that is a sign of learning delay. Now, to what extent she will be delayed, they can't answer at this time. Only time will tell. The good thing is that her "slowing" is only "mild" and not "severe" or signifigant". So, right now with us having Sadie in First Steps Therapy that is the best thing we can do for her. At home, we are already seeing improvements just in the past month. She is more stable and pulling up more. She is standing better. She is chewing better. She seems more focused. We have weaned her off of one medicine entirely and we have lowered the dosage on another. She is no longer on the ketogenic diet, and at this time we are not anticipating VNS surgery. It has been 44 days since her last seizure! God knows what HE is doing!

My school, Bridgepoint Elementary, and everyone that enters those doors were made aware of Sadie and her diagnosis. So they all (staff, parents, and students) came together and had a benefit that they called "Strollin' for Sadie". Many area business donated money to have shirts made that were sold the week of Sadie's walk. They had several fund raising activities throughout the week. The whole school got involved! It was awesome! They raised a lot of money for Sadie and her medical needs! THANK YOU!!!!!!!!!!!!!

Scooter has fun entertaining himself by riding his tricycle 'round and around our kitchen table. We made a "tunnel" to keep things adventurous.

We are finally Home! Sadie hasn't had any seizures since Sunday! However she is on A LOT of medication. She sleeps often and when she is awake she is definitely unstable. We are in the process of weaning her off of one of the medications and if all goes well with the decrease of that one, then we may possibly wean another one. Then that will only leave two meds. She is still on the ketogenic diet and will remain on it as long as her seizures are controlled. Right now its sort of a mystery as to why her seizures have decreased. the doctors say it could be the meds, it could be the diet, or it could be a combination of the two. We won't know until we start peeling away some of these "layers" of meds and that has to be a slow process. If you take seizure meds away too quickly it could cause more seizures. Of course we still don't know what's causing her seizures. But we do know that after the PET scan she is showing seizure activity on both sides of the brain, so for right now surgery is out. However, we do have a consultation appointment in December to discuss having the VNS (vegas nerve stimulator) inserted in Sadie. For now, we are just so happy to be home and to be back to a somewhat normal life again. God is in control and so we have all of our faith in Him and His plan for Sadie. Again, thank you for the prayers and thank you for all of the support. We are truly blessed to have so many people in our lives that care and love us.

Sadie recovering from her PET scan. Our last test!

More time in the playroom hanging out in the car. I think she was trying to tell me she was ready to go home.

Sadie coming back to her hospital room after her bath. She got her jammies on then we headed to the playroom (all drugged up).

Scooter with more of his friends from the Ronald McDonald House.