Saturday, December 29, 2007
Tuesday, December 18, 2007
Well, we finally heard back from Dr. Puri's office concerning Sadie's 4 hour EEG from last week. We have some good news and some concerning news. The good news is that they are seeing NO seizure activity. YEAH! God knows what HE is doing. The concerning news is that they are seeing some "mild slowing" in her brain. Of course our immediate question was "What does that mean?" Their response was very vague. They have no way of knowing for sure what that could mean for Sadie. However, they did say that when an EEG shows "slowing" that is a sign of learning delay. Now, to what extent she will be delayed, they can't answer at this time. Only time will tell. The good thing is that her "slowing" is only "mild" and not "severe" or signifigant". So, right now with us having Sadie in First Steps Therapy that is the best thing we can do for her. At home, we are already seeing improvements just in the past month. She is more stable and pulling up more. She is standing better. She is chewing better. She seems more focused. We have weaned her off of one medicine entirely and we have lowered the dosage on another. She is no longer on the ketogenic diet, and at this time we are not anticipating VNS surgery. It has been 44 days since her last seizure! God knows what HE is doing!
My school, Bridgepoint Elementary, and everyone that enters those doors were made aware of Sadie and her diagnosis. So they all (staff, parents, and students) came together and had a benefit that they called "Strollin' for Sadie". Many area business donated money to have shirts made that were sold the week of Sadie's walk. They had several fund raising activities throughout the week. The whole school got involved! It was awesome! They raised a lot of money for Sadie and her medical needs! THANK YOU!!!!!!!!!!!!!
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